Your Story Matters:
we want to hear from you
We asked caregivers: what is your biggest challenge?
“Trying to stay positive. Trying to keep everyone involved informed and on the same page.”
“Not feeling like I was enough.”
“Finding time for my needs and feeling they are important in the face of extreme medical needs for the other person.”
“Time.”
“Feeling overwhelmed. Always.”
“It was exhausting and sometimes especially when caring for older family there is no “better” at the end.”
“Caretaker fatigue and not having answers to these chronic complex conditions like mold toxicity, lyme/vabesia, MCAS, uncontrolled seizures.”
“Time.”
“Fear and Exhaustion.”
Tell Us Your Story
We want to hear from you
Schedule an Interview
In person or by Zoom:
Complete a Survey
CAREGIVERS: have a longer story to share?
Caregiving is complex. If you have more to share and are interested in a longer format survey, this comprehensive caregiver survey is for you (approximately 20 minutes to complete):
Join a FOCUS GROUP
We are forming focus groups to closely examine and validate the build out of the Vigilant Advocate platform. We need participants. Focus group dates and locations will be posted on our social media platforms; please contact us at focusgroups@thevigilantadvocate.com if you are interested in participating.
